TPN Anniversary
One year ago today, I started TPN (IV nutrition). At the time, I had only been getting about 600 calories a day, between the little I could still eat and the formula I was getting constantly through...
View ArticleNEWSED Award
Atlantis ADAPT was honored by NEWSED with a Civil Rights Award for the work we did to try to save Medicaid this summer. I was grateful to be included as one of the troublemakers.
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Pumping iRon
Some people go to the gym to pump iron. I just connect it to my port! Getting an iron infusion to help with my anemia. My TPN doesn’t have iron in it, so I have to pump iron occasionally. I don’t even...
View ArticleER Again
Here we go again. In the ER with another anaphylactic reaction thanks to MCAS. It took three rounds of EpiPen and some solumedrol to get me stable. This time it was a scent from someone’s lotion. This...
View ArticlePotassIum Problems
In the ER again (I was just here Friday night). Apparently my potassium was high, so my doc sent me here to have it rechecked. It was likely due to an error in drawing it, but better safe than sorry....
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Happy turkey day
I really wanted to have turkey this year, so I figured out a way. Happy Thanksgiving everyone! I’m so grateful to have all of you in my life!
View ArticleER with MCAS
In the ER again. I’m going to have to educate them about anaphylaxis. They thought three doses of epinephrine 20 minutes apart would give me a heart attack. It takes that many to break the cycle (and...
View ArticleMore ER Woes
I don’t get the point of EpiPens. If you use one and it breaks your symptoms, when you get to the ER they call it a minor allergic reaction. It doesn’t matter that my tongue felt like it was swelling...
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Cyber monday with chronic illness
Some people use cyber Monday sales to buy Christmas presents. I took advantage of the cyber Monday sale at @medicalertfoundation to get two Medic Alert bracelets, as even just the highlights wouldn’t...
View ArticleWhat is ptsd?
This is the first post in a series about PTSD, complex PTSD, and medical PTSD. To start with, I’m going to talk about symptoms and basics. PTSD, or post-traumatic stress disorder, can occur in...
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